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PXE International celebrates 18 years of serving PXEers!
Or call Abbie at 202.362.9599, extension 252
Read the lay summary of this interesting research
Photo essay - What's it like to participate in the magnesium supplement clinical trial?
Alan thoroughly covers audiobook services for visually impaired as well as commercial services available to all
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Latest News

  • I'm in Love with an Acrobat, by Jessica Harper
  • Making History of PXE: Elizabeth Terry's Experience of the PXE Clinical Trial
  • Warfarin Accelerates Mineralization in PXE Mice - A lay summary
  • Hurdles to Successful Fundraising, and How to Jump Them, by Rachel Koren

Events

  • Webinar recording now available! Can we fix the mutated PXE-associated protein in the liver?
  • Pediatric study now recruiting
  • IRDiRC meeting Dublin 4/16-17 seeks 200 treatments for rare diseases by 2020 - Read the report
  • NEI's Audacious Goals Initiative 2/24-26 to drive innnovation in vision research and care - A report
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