Individuals around the world have offered their time to speak with local patients about living with the disease, what PXE International is doing, and to answer any questions you might have. To locate someone in your area check out the support group offices below or email firstname.lastname@example.org with your geographic location or call Christine Vocke at 202.362.9599 ext 235.
|Support Group Offices
You are not alone! Find a support group near you and connect with other PXEers in your area!
|PXE Vision: By and For PXEers
With a no-nonsense approach, Pat Manson addresses tough issues that many PXEers face.