My name is Alexandra Navarrete and I am a psychologist in Venezuela. I am also the founder of PXE Venezuela. Thanks to the help of PXE International, PXE Venezuela was founded in 1999.
At the present time, three people are registered in our support group, however many diagnosed people exist, but we have not been able to contact them to join our support group and receive all the medical information.
At the same time, I have been devoted to inviting professionals of medicine in Venezuela to participate in the investigation of PXE.
We are dedicated to helping all those that need to know about this illness.