2008 eNewsletters


Published bimonthly, our eNewsletters keep you up to date on the latest happenings at PXE International.
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December 2008 [Volume 1, No. 6]

  • A possible drug alternative to Avastin® and Lucentis®
  • Patient Advocate Foundation can help
  • PXEers in South Africa report
  • Social Security's Compassionate Allowances Initiative
  • January 14 webinar: PXE Research
  • Regional meetings
  • Annual appeal giving


October 2008 [Volume 1, No. 5]

  • 5th Annual North American ABC Meeting 
  • High technology for low vision 
  • Status of Race for Research 
  • PXE 2008 Conference feedback
  • October 21 webinar: Low Vision
  • Promotion: Terry Mac Dermaid
  • eBay Giving Works


September 2008 [Volume 1, No. 4]

  • Clear evidence: PXE is a metabolic disease 
  • eBay auction: 20th Century Fox authentic movie swag
  • September 16 webinar: Dr. Wayne Fuchs on PXE and the Eye
  • Shop through iGive and support PXE International
  • In the news: Downi Creations, and Meet Myrtle


August 2008 [Volume 1, No. 3]

  • PXE Research at the Biennial Conference
  • Clinical trials comparing Avastin and Lucentis
  • Register for the Conference
  • August 25 webinar: Genetics and PXE
  • Dollar bill campaign - A simple fundraiser


July 2008 [Volume 1, No. 2]

  • Human gene therapy for treating blinding eye disease
  • August 25 webinar, Genetics and PXE
  • Dollar bill campaign - A simple fundraiser
  • When your partner becomes visually impaired


June 2008 [Volume 1, No. 1]

  • Vitamin K Precursor Might Be Involved in PXE
  • Register for the Conference
  • Webinars and LIVE-Chats Launched May 2008