2011 eNewsletters


Published bimonthly, our eNewsletters keep you up to date on the latest happenings at PXE International.
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October 2011 [Volume 4, No. 7]

  • Rescue of ABCC6 disease-causing mutations in mouse liver
  • A Note to New PXEers, by Pat Manson
  • iPhone4S, Snoop Dogg, and an 85-pound Rutabaga, by Jessica Harper
  • Submit your creative art
  • World class researchers await

 



August 2011 [Volume 4, No. 6]

  • Lay Summary - PXE International 2010 Research Meeting
  • Don't stop now - Fill in your PXE research survey
  • Lemonology, by Jessica Harper
  • Learning Genetics
  • Combined Federal Campaign of the National Capital Area (CFCNCA)

 



June 2011  [Volume 4, No. 5]

  • We need you! Please participate in this important research study
  • Lucentis and Avastin equally effective for AMD
  • Welcome new Professional Advisory Board members
  • Vancouver, BC Regional Meeting June 8

 



April 2011  [Volume 4, No. 4]

  • Vitamin K does not prevent mineralization in the PXE mouse
  • Pianos, Key Lime Pie, and iPads
  • PXE and Art
  • International Disease Research Consortium (IRDiRC) sets goals for 2020
  • How to use social media - May Webinar
  • 2010 Honor Roll of Donors

 



March 2011  [Volume 4, No. 3]

  • BioBank spotlight
  • April 6 webinar - Women's Health Issues in PXE
  • Regional meetings a great success
  • PXE France

 



February 2011  [Volume 4, No. 2]

  • Psuedoxanthoma Elasticum featured on the cover of CTS Journal
  • In memory of Diane Rohrmann
  • PXE International Regional Meetings
  • Missed a webinar? Find it in our archives
  • Meet our new staff  

 



January 2011  [Volume 4, No. 1]

  • January webinar:  PXE Research Meeting:  Progress 2010
  • Interesting gains in treatment for macular degeneration
  • Welcome Clarissa Sellers