PXE International Regional Meeting Convenes in Vancouver, Canada


MARCH 18, 2011
PXE International Regional Meeting Convenes in Vancouver, Canada
A small group of affected individuals gathered for a fun and informative evening.


A small but excited group of people assembled in Vancouver, British Columbia, Canada on March 17, 2011. One person drove six hours to join us. Another was a young woman who had come to our meeting in Washington State about 14 years earlier, and related to us that, "I was so frightened to learn the condition affected more than the skin, I made my mother leave! We had driven hours to get there, but I just had to leave!" She was grateful for the Vancouver gathering, and was delighted to connect with PXE International and another affected individual. Sharon Terry presented the basic issues and answered questions. The meeting informed and educated affected individuals and their families. The group decided that they would like to have another meeting soon, and so we have targeted the second week in June for the next meeting. 

To learn more about PXE International regional meetings and to see if a meeting is coming to a city near you, visit our Regional Meetings page.