Events


ABC Meeting 2016: Innsbruck, Austria


PXE International celebrated its 20th Anniversary Conference!
October 16-18, 2015  ** Bethesda North Marriott
More information

PXE International 20th Anniversary Conference


2015 and 2014 webinar recordings available


Title: Tissue injury: An essential ingredient for calcification where you don't want it
Presented on: February 25, 2015
Presented by: Jonathan Schoenecker, MD, PhD, Vanderbilt University 

 

Title: PXE Research Planning 2015
Presented on: January 16, 2015
Presented by: Patrick Terry, President, PXE International Board of Directors 

 

Title: Nature's stone: How the body balances calcification to bones while protecting soft tissue
Presented on: December 3, 2014
Presented by: Jonathan Schoenecker, MD, PhD, Vanderbilt University

 

Title: Introduction to the new PXE survey: PXE Health Engagement and Lifestyle Program (HELP)
Presented on: November 24, 2014
Presented by: Sharon Terry, CEO, PXE International 

 

Title: ABCC6 prevents the ectopic mineralization seen in PXE by mediating hepatic ATP release
Presented on: November 24, 2014
Presented by: Koen van de Wetering, PhD, DVM, Netherlands Cancer Institute

 

 


Other Events


 

Mark Lebwohl, MD

 

PXE magnesium supplement clinical trial
reaches one-year milestone January 2014!

Personal stories from participants, FAQs, interviews with the researchers

[Photo: Mark Lebwohl, MD, Principal Investigator
Mt. Sinai School of Medicine, ​New York]

 

Do you have a

child with PXE?

Pediatric study

now recruiting

 

Qualifications: 
18 years and younger, and have PXE
Participation: 
Complete survey, Donate DNA via cheek swab

Email Farrah Asgari-Majd
or call 202.362.9599, ext 252

 

Table 2 Outstanding Research Questions - 2012 PXE Research Meeting

2012 PXE Research Meeting

Summary article published in the JID

Lay summary of the meeting

 

2012 PXE Health Challenge
Keep your healthy choices going
in 2013 and beyond!