Main Office Welcome
The diagnosis of pseudoxanthoma elasticum (PXE) is a difficult one to comprehend at first. And certainly, as with all rare diseases, you feel alone when you learn you have this condition. The work of PXE International includes trying to help you feel like you are part of a community, a family, of individuals who are working to understand what PXE means to them. And also like all rare diseases, it means something different for each person.
We offer you support, companionship and forums for discussing your condition with others. We recommend you contact the support person in your area for a chat with someone, or feel free to call the main office.
Welcome to the PXE family.