Minnesota Office Welcome
Greetings to all!
I am Tere (Teresa). I live in Apple Valley, a suburb of Minneapolis, Minnesota. I was diagnosed with PXE in the late 60's (at the age of about eight) and one of my sisters also has PXE. She has been legally blind since 1992. We have four other sisters and one brother who are unaffected. We also have two cousins (out of many) with PXE.
The year 2006 proved to be the beginning of eye problems for me. Through the use of repeated treatments of Photo Dynamic Therapy (PDT) and Avastin shots, my vision has been saved thus far.
My sister and I have been to several of the PXE International conferences in the US, so we may have met before. The Minnesota office is here to offer suport to all as we move forward in understanding our disease.