Get Involved with PXE International

Finding a treatment for pseudoxanthoma elasticum (PXE) begins with you. There are many ways to get involved, and we appreciate each one of them. Thank you for your support!


- Be counted internationally, be heard!
- Participate in PXE research
- Connect with other PXEers
- Free quarterly eNewsletter

Registration benefits you and your PXE community.

Registration form
PXE Chat and PXE Announcements email lists


Elizabeth and Lee Wedding Donations
Elizabeth Rothman and Lee Taglin
Have requested wedding donations be made to support PXE International!


Other ways to donate: vehicle, stock, CFCNCA

PXE Health Engagement and Lifestyle Program (HELP) Survey
If you have pseudoxanthoma elasticum (PXE),
donate your clinical information
by completing the online
PXE & LIFE survey.


iGive logo
Shop and earn money for PXE research at the same time!

Shop online using iGive

Fundraising graphic
Put the "Fun" in "Fundraising"!
Here are some ideas