Get Involved with PXE International

Finding a treatment for pseudoxanthoma elasticum (PXE) begins with you. There are many ways to get involved, and we appreciate each one of them. Thank you for your support!


- Be counted internationally, be heard!
- Participate in PXE research
- Connect with other PXEers
- Free quarterly eNewsletter

Registration benefits you and your PXE community.

Registration form
PXE Chat and PXE Announcements email lists


Jessica Harper Matching Donation Campaign Banner Matching Campaign!
Up to $200,000 in donations will be matched!


Other ways to donate: vehicle, stock, CFCNCA

PXE Health Engagement and Lifestyle Program (HELP) Survey If you have pseudoxanthoma elasticum (PXE),
donate your clinical information
by completing the online
PXE & LIFE survey.


iGive logo
Shop and earn money for PXE research at the same time!

Shop online using iGive

Fundraising graphic Put the "Fun" in "Fundraising"!
Here are some ideas