gene patenting

This article first appeared in the October 2010 eNewsletter.
Updated 09/15/2020

History of the ABCC6 gene

Since its founding in 1995, PXE International has been a catalyst in just about all research on pseudoxanthoma elasticum (PXE). When the Terry’s children were diagnosed in 1994, it was immediately clear to them that there was a need to bring the community together around one goal - finding a way to mitigate the suffering endured by people affected by PXE.