For more information on PXE research, please visit the sites below.
Genetic Alliance transforms health through genetics. They promote an environment of openness as essential to improving the health of individuals, families, and communities. Please see their PXE Disease page.
National Library of Medicine
Here is a PXE resource page with information regarding the genetics of PXE, physicians, and clinical trials. This page also links to the PubMed database of published articles on PXE.
Find a concise and accurate description of PXE, written by experts and edited by GeneTests of the University of Washington.