PXE eNewsletter April 2019

Sam & Mike Launch "50 by 70" Biking Series for PXE Research 

Your donation is doubled this year!

In just a few weeks Sam Harper and Mike Romanow are setting off on their next bike trip to raise money and awareness for PXE research!

Sam Harper and Mike Romanow

Sam Harper is a PXE-er himself and a board member at PXE International and Mike Romanow is a dedicated supporter. They are beginning a new ride series called "50 by 70" where they will bike through all 50 states by the time they turn 70.

Their first trip, "Cycling the Sierras," begins on May 15th; they'll ride through California, Nevada, and Utah.

Stay tuned for updates as Sam and Mike set off on their latest adventure! We will be with them every pedal stroke of the way. Each donation made in honor of their rides this year will also go toward our ongoing matching challenge!

Matching Challenge Status Update

This month our donation total reached $332,465 from over 350 donors! Thank you so much for your generosity in this challenge so far! Each donation funds important PXE Research as we get closer to clinical trials. 

Help us reach our goal of $500,000 by continuing to share this challenge with others!

matching challenge thermometer

PXE International Research Webinar Series

Check out our latest webinar with Koen van de Wetering on the pyrophosphate shortage in PXE.

Our webinars provide the most current information from the latest research focused on understanding and finding treatments for PXE directly from the researchers themselves. You can watch the whole series on our YouTube Channel.

We will be scheduling more webinars in the future, so stay tuned for updates on when you can join the conversation!

Watch all of our webinars on our YouTube channel.

Join iGive and Help PXE While You Shop

Now through May 10th each new iGive shopper helping PXE International, Inc. gets your group a $3 bonus donation. On top of that $3, PXE International, Inc. gets the regular donation.

iGive is a web add-on comparable to Amazon Smile; all you have to do is sign up and add the extension to your browser! Then with every purchase you make at over 2,000 accepted stores, iGive donates to PXE International.

Join iGive

Order PXE International T-Shirts to Help Fund Research

Did you know that the money from every PXE T-shirt order goes directly to helping fund PXE Research? Order yours today! Our shirts come in white and neon yellow, in sizes from XS to 3XL and they are made of 100% Polyester in a dry-wicking performance material to keep you cool all summer long.

Order yours below! You will receive an invoice from a team member at PXE International and we will ship your shirt directly to you. 

Order your shirt here

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If this information was helpful to you, please consider making a quick donation today because every penny counts. 100% of donations go to support and research.