News

Major Announcement - Important discoveries in pseudoxanthoma elasticum (PXE) research may point to potential therapies

November 4, 2014
Preventing mineralization found in pseudoxanthoma elasticum: the role of PPi

November 4, 2014
Preventing mineralization found in pseudoxanthoma elasticum: the role of PPi

March 11, 2014
PXE International to be part of the National Patient-Centered Research Network through Genetic Alliance and PCORI
PXE International and nine other disease advocacy organizations, supporting conditions from rare to common, were competitively selected by Genetic Alliance to participate in the pilot of CENA, a health data network that will be part of the National Patient-Centered Clinical Research Network through Genetic Alliance. 

March 11, 2014
AREDS2 trial: What it means for macular degeneration, and PXE
Recommended by the 2001 Age-Related Eye Disease Study (AREDS), AREDS vitamin supplements are often taken as a preventative treatment for both AMD and retinal symptoms of PXE. New interests and concerns prompted researchers from the National Eye Institute to launch the AREDS2 study in 2006. Their results were published in 2013.

November 4, 2013
Interview with Yale student, Alex Borsa

November 4, 2013
DNA sequencing: From the past to the next generation

November 4, 2013
PXE Research Meeting held in Budapest, September 27-28, 2013
Forty researchers gathered in Budapest in September to discuss progress in PXE research. There are many new questions and many persistent questions that remain unanswered. There are also many new ideas ready to be tested.

July 29, 2013
Update on Gene Patenting in the USA
PXE International stewards the ABCC6 gene patent. What will change as a result of the Myriad ruling?