News

September 15, 2007
Study on the Relationship between Genetic Mutations and Physical Symptoms of Pseudoxanthoma Elasticum
The genotype is only part of the story.

September 15, 2007
Finally! Analysis of the use of Avastin for Retinal Bleeding of Pseudoxanthoma Elasticum
Vision loss is one of the most serious and frightening aspects of pseudoxanthoma elasticum (PXE).

FALL 2007
by CHARLES HARPER

Charles Harper wrote this as the first column for his local newspaper in Sedona, AZ. It is a series of articles on discovering the sacred and the profane in the everyday nouns of our lives. It appeared in the Fall 2007 PXE MemberGram.
 

June 1, 2006
Treatments for Retinal Bleeding Caused by Pseudoxanthoma Elasticum
Some individuals with pseudoxanthoma elasticum (PXE) have chorodial neovascularization (CNV) and scarring, a similar problem that occurs in age-related macular degeneration. Information about AMD is often useful to people with PXE.

May 15, 2006
Testicle Study Shows Additional Area of Mineralization in Patients with Pseudoxanthoma Elasticum (PXE)
An article recently published in the journal Radiology confirmed the association of pseudoxanthoma elasticum (PXE) and testicular microlithiasis.

August 24, 2004
U.S. Patent Office Issues First Gene Patent to Patient Advocacy Group
PXE International, a patient advocacy group representing over 3,000 patients and their families around the world, today announced that they have been awarded a landmark patent by the United States Patent and Trademark Office.

March 8, 2004
Pregnancy and Obstetrical Outcomes in Pseudoxanthoma Elasticum
What are the effects of pseudoxanthoma elasticum (PXE) on pregnancy and on the fetus, and what are the effects of pregnancy on PXE?

June 15, 2003
Prominent Mental (Chin) Creases: A New Sign of Pseudoxanthoma Elasticum
The presence of exaggerated mental creases is a useful physical marker for pseudoxanthoma elasticum (PXE).

June 15, 2003
Mammographic Findings in Pseudoxanthoma Elasticum
Systematic evaluation of mammography and breast pathology in pseudoxanthoma elasticum (PXE).