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PXE eNewsletter January 2019

HAPPY NEW YEAR FROM PXE INTERNATIONAL!

Matching Challenge Update!

PXE-ers are killing it in our matching challenge in just a few short months! An anonymous donor challenged PXE International to raise $500,000 this year and promised to match it. So far we have received $309,160 from nearly 250 donors! Share this challenge with your friends and family, help us push PXE International to reach this goal by doubling your impact and having your donation matched!

PXE eNewsletter August 2019

PXE International Breaks Ground on Exciting Clinical Study

On August 6th PXE International conducted a clinical study to see if people affected by PXE experienced increased levels of pyrophosphate (PPi) in their blood if they took capsules containing PPi.

PPi might be a treatment for PXE, so this is an important first step. We had a magnificent day with 11 volunteers who gave their time (and blood) to this study!

Researchers Drs. Jouni Uitto and Qiaoli Li also participated in the day (pictured below).

If this information was helpful to you, please consider making a quick donation today because every penny counts. 100% of donations go to support and research.