research

PXE eNewsletter December 2017

Happy New Year!

Yes, it is the end of the year. We are most grateful for the opportunity to serve you another year. Please make a donation to support our work if you have not done so already – we need your help. Add us to your year-end donations.

Happy New Year,

The Staff: Sharon, Chris, Mary, Elizabeth, Erin, Eliza, Ian, Sam 

The Board: Pat, Lionel, Jessica, Joe, Kathy, Barb, Judy

PXE eNewsletter August 2019

PXE International Breaks Ground on Exciting Clinical Study

On August 6th PXE International conducted a clinical study to see if people affected by PXE experienced increased levels of pyrophosphate (PPi) in their blood if they took capsules containing PPi.

PPi might be a treatment for PXE, so this is an important first step. We had a magnificent day with 11 volunteers who gave their time (and blood) to this study!

Researchers Drs. Jouni Uitto and Qiaoli Li also participated in the day (pictured below).

Dec. 2, 2016 PXE News

PXE International Center of Excellence in Research and Clinical Care 

PXE International is excited to announce the opening of the PXE International Center of Excellence in Research and Clinical Care at Jefferson. The Center was launched at the beginning of the 2016 PXE International Biennial Research Symposium: “Progress in Diagnostics, Research and Treatment” on September 15, 2016.

If this information was helpful to you, please consider making a quick donation today because every penny counts. 100% of donations go to support and research.