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You have told us you want answers to your questions about PXE. We want to help you get them, so please contribute your experience with PXE here in our new registry system.
We have partnered with a company called because they are the best at safeguarding your information. Please sign-up or log-in below to share your experiences with, and knowledge of, pseudoxanthoma elasticum. You will also have the opportunity to share your medical record with us in a much easier way for you than mailing them to us!
Please sign-up for a new account even if you were a member of the old PXE Registry.