PXE Meeting in Belfast Ireland

DateSeptember 18, 2026

PXE International is planning a PXE community gathering in Belfast, Northern Ireland. The main PXEer session will take place on September 18 at Queen’s University Belfast. The meeting will bring together people affected by PXE, families, clinicians, and researchers for invited speakers, plain-language research updates, Q&A, and conversation. The gathering will focus on learning, connection, clinical trial readiness, and how the PXE community can help move research and treatment development forward.

It is possible we will add a "research day" on September 19th to test some new eye imaging methods.

Register here.

Hotel recommendations within reasonable distance of the meeting. Belfast Hotels near Queens