PXE Meeting in Belfast Ireland

DateSeptember 17, 2026

PXE International is planning a PXE community gathering in Belfast, Northern Ireland, with the main PXEer session likely on September 18 at Queen’s University Belfast. The meeting will bring together people affected by PXE, families, clinicians, and researchers for invited speakers, plain-language research updates, Q&A, and conversation. The gathering will focus on learning, connection, clinical trial readiness, and how the PXE community can help move research and treatment development forward.

Register here.