PXE International Website Privacy Policy

This policy applies to the public PXE International website. It explains how PXE International handles information collected through ordinary website use, including contact forms, email sign-ups, donations, and website analytics.

This policy does not govern participation in the PXE International Registry, clinical studies, or research data collection through Digital Cabinet. Those activities involve separate consent, privacy, and data-governance terms, which are presented before an individual registers or shares health or research information.