Claire Driscoll
Member at Large
__Here is Claire's Bio__
Sharon Terry
CEO, President
Sharon F. Terry is President and CEO of PXE International and Genetic Alliance, an enterprise engaging individuals, families, and communities to transform health. As ‘just a Mom’ with a graduate...
Jessica Harper
Harper has been an actor for over fifty years. She got her start in the New York theater, appearing in shows ranging from Hair on Broadway to the avant-garde plays...
Barbara Drewicz
Barb is a native of Southeastern Pennsylvania, where she currently lives with her husband, Mark. She has two adult daughters and four fantastic grandchildren. She graduated from West Chester University...
Sam Harper
Sam Harper is a writer/screenwriter who lives in Brooklyn, NY, and Inverness, CA, with his wife of 38 years, Anna McDonnell. They have three adult sons, Henry, Quinn, and Eliot. Sam...
Lionel Bercovitch
Scientific and Medical Director
Dr. Lionel Bercovitch, the founding medical director of PXE International, is uniquely qualified as an advocate, clinician, and researcher for PXE. He became intensely involved in PXE following his diagnosis...
Kathy Hersey
Kathy Hersey was born and raised in Garden City, NY and now resides in Westchester County, NY. She is married to Robert and has three sons, Rob, Austin and Jonathan....
Joe Maas
Treasurer
Joe Maas was born and raised in Cincinnati, Ohio, where he continues to live today. Joe is married to Robin and has three grown children, two sons and a daughter,...
