Claire Driscoll

Member at Large

__Here is Claire's Bio__

Sharon Terry

CEO, President

Sharon F. Terry is President and CEO of PXE International and Genetic Alliance, an enterprise engaging individuals, families, and communities to transform health. As ‘just a Mom’ with a graduate...

Jessica Harper

Member at Large

Harper has been an actor for over fifty years. She got her start in the New York theater, appearing in shows ranging from Hair on Broadway to the avant-garde plays...

Barbara Drewicz

Member at Large

Barb is a native of Southeastern Pennsylvania, where she currently lives with her husband, Mark. She has two adult daughters and four fantastic grandchildren. She graduated from West Chester University...

Sam Harper

Member at Large

Sam Harper is a writer/screenwriter who lives in Brooklyn, NY, and Inverness, CA, with his wife of 38 years, Anna McDonnell. They have three adult sons, Henry, Quinn, and Eliot. Sam...

Lionel Bercovitch

Scientific and Medical Director

Dr. Lionel Bercovitch, the founding medical director of PXE International, is uniquely qualified as an advocate, clinician, and researcher for PXE. He became intensely involved in PXE following his diagnosis...

Kathy Hersey

Member at Large

Kathy Hersey was born and raised in Garden City, NY and now resides in Westchester County, NY. She is married to Robert and has three sons, Rob, Austin and Jonathan....

Joe Maas

Treasurer

Joe Maas was born and raised in Cincinnati, Ohio, where he continues to live today. Joe is married to Robin and has three grown children, two sons and a daughter,...